Orkambi Video Diaries – Day 3

I really wasn’t going to post a video today. I’ve updated twice in two days and I imagine my Facebook friends are growing quite Ali weary. Also, it goes against my better judgement to show the internet how truly awful I look today. That being said, I went ahead and made a video anyway because it’s my worst day on this drug so far and it might be helpful to document the bad days along with the better ones.

When I was researching Orkambi before taking the drug, I watched a lot of Orkambi videos and it eased my mind to see what the bad days looked like. It helped me prepare and psych myself up. And even though I feel (and look) pretty crappy today, I assure you what I’m feeling is nothing anyone living with CF can’t handle. I think we’ve all seen worse days.


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